Big Changes

For our Baby Girl.
Today we will be going to Dr. Ruge for a visit to check on her back and then we will head over to O'Hare.
Fabi will be heading to Ohio today and will be staying with Tami at CMM-West (see right).
Mike's mom has been admitted to a hospice care facility and is not doing well.
I wanted to mention that the prayers worked beautifully.
Her back is doing much better although I'm still worried about it. Her skin is very thin and tight in the area that had opened back up. I have a feeling that it may need further treatment.
Tami has assured me that she will send email updates and I will post them as I know there are many of you praying for her next step (literally).
Thank you so much everyone. Thank you for the diapers and wipes, the baby 'stuff', the advice, the donations, and encouragement.
Fabi is a very, very special little girl and our family was changed in ways that will be felt for many years to come by having her here.

Prayer Needed

Today when I was getting Fabi dressed, I noticed there is a spot on her back that has opened up and it's oozing a little.
Tami and I are a little nervous about it so I'm going to call Dr. Ruge to see if he can move up her appointment. Her original appointment was scheduled for Thursday.
Please keep Fabi in your prayers for complete healing. She needs to be healed and ready to board a plane for Ohio on the 25th.
Thank you!

Dolly

We ordered a Cabbage Patch Preemie doll for Fabi (thanks Tanya for all the info - we used it!!!) and here she is being introduced to it.
She loves it and gives her dolly hugs all the time :)
She'll have her last Dr. appointment next Wednesday the 17th and we're expecting her to be cleared to go to Ohio. Tami has Doctors and hospitals lined up - I'll update the blog when I hear news.
We will miss Fabi dearly, but are so hopeful and praying for this next very important stage in her healing.

Pretty Girl....

 

 

...cut a tooth!!!!
Bottom right :)

Happy.....and Sad......

We had Fabi's follow up today with Dr. Ruge. The good news is her back looks 'great' in his words....the sad news is we'll only have her for the next 2-3 weeks.

Tami (CMM-West) has doctors/hospitals that will evaluate her in Ohio and see if she will ever be able to walk. They will then determine if she is surgery/casting - able.

They have to be very mindful of her home in Haiti. She will not have access to braces, etc as she grows so intervention may not be her best option.

I know, this is very sad. But this is reality.

It seems unfair and it is.

Please join me in praying for this dear, little one that the absolute BEST decision will be made by the doctors caring for her.

Just for the record....

It appears Dark Corn Syrup works wonders for constipation!!!!!

She still cries sometimes when she poops, but not sure if she's upset at getting dressed or pooping hurts.

Sorry for all the poop talk, but this is important 'stuff' when dealing with spina bifida :)

Good News.....

Fabi clearly moved her big toe on her right foot!!!!!!